Dear Expectant Parent,

If you are reading this,  it is likely that you were just given the news that your baby may have Down syndrome.  You may be feeling overwhelmed and uncertain.  We understand the many emotions that you may be experiencing right now.   It is normal to mourn the loss of the baby that you thought you were going to have.  We have been where you are and we are here to help.             

The Down Syndrome Association of Greater St. Louis was created by parents of children with Down syndrome.  One of our missions is to support families with information and encouragement.   For many parents, the single most helpful thing that they did after receiving the news was to talk to other parents of children with Down syndrome.  If you would like to talk with someone or receive our packet of information for Expectant parents, please call our office at (314)961-2504.  You can also e-mail Christy Klaus, our New Parent Support Coordinator, at christy@dsagsl.org.  She would be happy to answer any questions or send information to you.

The weeks ahead will likely be touched with many emotions as you travel this unexpected path. We do ask you to remain mindful of the following information during this time.

  • Quality of life for individuals with Down syndrome has increased dramatically in recent years due to significant advances in the quality of medical care and educational support.
  • Some of the written and word-of-mouth information that is available on Down syndrome is outdated and inaccurate. Make sure that any information you consider is from a recent and reliable source.
  • It is essential to continue good prenatal care throughout the remainder of your pregnancy and surround yourself with people who are supportive of you and your child.

 

Here are some resources that expectant parents have found helpful: