"40 Miles for Alex'

It's not too late to register!    “40 Miles for Alex”  fundraiser will be held on November 13, 2010  in Fenton, MO 

Luke Kratky is turning 40 and to celebrate, is inviting up to 20 guests to join him in running 40 miles to raise money for Down syndrome in honor of his nephew Alex Nienhaus.

Details:  42 mile course consisting of 10 loops inside his subdivision, characterized by two very substantial hills. Two options; individual (entire 42 miles), and team of up to 3 people to run the 42 miles split how the team likes.

Hammer Nutrition products will be available at the aid station. Awards given to the first individual and first team winner. Moisture wicking t-shirts provided to all participants and volunteers. Post race party afterwards.

Run starts at 8 am on November 13, 2010 at 225 Romaine Spring View, Fenton, MO  63026.

Entry fee:  Request $200 donation to Down syndrome payable to “Puttin’ for Down Syndrome.”
The first 20 to turn in donation money will comprise the runners on November 13th.

Contact info:  For entries/volunteers/sponsorship, contact Luke Kratky at 314-471-2316 or
luke.kratky@hotmail.com

Fall 2010 DSAGSL Newsletter is available!

The Fall 2010 edition of the DSAGSL's Family Connections Newsletter is now available!

click here:  http://www.dsagsl.org/quarterly-newsletters/

New Healthy Lifestyles Session to Begin at Fitwize

October 25, 2010 starts a new session of Healthy Lifestyles at Fitwize4Kids, which is located in South St Louis County. 

Click here for details:   http://www.dsagsl.org/healthy-lifestyles/

Click here to register:  http://www.dsagsl.org/fitwize-registration/ 

St. Louis Arc Family Workshop Series for 2010 - 2011

St. Louis Arc has moved into their wonderful new building and are offering some great workshops this year!  Workshops are free and registration is required.  Contact Ann Mangelsdorf at amangelsdorf@arc.org or call 314-817-2275.  You may also register online at www.slarc.org.

Click Here for the schedule of workshops.

Teacher Packet

Looking for some information for teachers? Check out our new "What Students with Down Syndrome Want Teachers to Know..."

The DSAGSL has compiled useful information about teaching students with Down syndrome into a 9 page packet for teachers, covering the following topics:

-How Do Students with Down Syndrome Learn?
-Curriculum Adaptation, Simplify, Supplement, Alter
-Great Resources for Teachers
-The Home and School Partnership
-Health Concerns That May Affect Learning
-Communication
-Gross Motor Skills
-Fine Motor Skills
-A Word About Hugs
-What is Down Syndrome?
-Is it Downs, Down’s or Down?
-Common Myths
-Programs and Services Offered by the Down Syndrome Association of Greater St. Louis

Click here to see the complete teacher packet.

Writing your own stories… for communication and behavior success!

Posted by: Jennifer on: August 3, 2010

For those of you who have children with any behavior issues

(Our angels?! Behaviors?! NEVER!) you may be familiar with

Carol Gray’s social stories created for children with autism.

The rest of you are saying, “What is a social story?”  Click here for more......

Professors Release Preliminary Data from Down Syndrome Study

Released: 8/3/2010 11:45 AM EDT
Source: Kansas State University

The tumultuous feelings parents have when they first learn their child will be born with Down syndrome give way to joy and resilience, according to preliminary data from a study by researchers at Kansas State University and Texas Tech University. 
http://www.newswise.com/articles/researchers-find-parents-of-down-syndrome-children-have-positive-experience

The survey is ongoing and is at https://surveys.ksu.edu/TS?offeringId=148766.